Ethical Challenges
In considering ethical challenges that may be relevant to the Venous Access Early Assessment Program, one challenge stands out: the assurance of applying the same consideration of care to all patients. “Each patient is unique and has life experiences that affect his or her perspective, choices, motivation and adherence” (in Mastrian and McGonigle, Chapter 5, (Mastrian, McGonigle, & Farcus, 2014, p.77). These factors may present challenges to the healthcare provider charged with fully engaging patients in healthcare decision-making. One important element of the VEAP is patient and family participation in decision-making. Achieving the goals of therapy and expediting care demands judicious use of time; truly engaging patients and families in decision-making affects the timeliness of those decisions. What if the patient specific circumstances (e.g. education level, cognitive function, etc.) interfere with the ability to move forward with the progression of care that meets the demands of efficiency? Are shared decisions truly shared in this circumstance? If not, how can this be addressed? Informatics solutions to shared decision making should account for patient education levels and/or cognitive limitations.
A somewhat parallel ethical challenge arose when considering the use of a smartphone app for patient use to track their PICC line care and maintenance. Patients who are sent home with PICC lines in place may feel overwhelmed by the responsibility of monitoring and caring for their PICC line. An app that provides tips and tricks to care and maintenance as well as the ability to input data for tracking by health care teams may enable early intervention for complications, increased patient satisfaction and compliance, and prevent readmissions. However, Beauchamp and Childress raise the question of distributive justice, which “refers to fair, equitable, and appropriate distribution (of treatment) in society determined by justified norms that structure the terms of social cooperation” (as cited in McGonigle & Mastrian, 2015, pp. 73-74). Is it ethical to develop and monitor a tool that cannot be used by those without the technology (smartphone) to support it?
Security Challenge
The VEAP may be affected by an information security challenge. The venous access team is managing a database which contains patient information specific to PICC line placements and includes patient names and MR numbers, therefore it must be protected in order to ensure privacy. When this database was first created years ago, it was saved to a thumb drive to enable updates from whichever workstation the staff was able to access at the time allotted for the work of updating the database. While this thumb drive was encrypted to enhance security of the patient information, the IT department soon required that the database instead be maintained and backed up on a secure remote server to eliminate the possibility of inadvertently exposing patient’s sensitive health information and provide network security to the database contents.
Currently, the IT department is examining the possibility of another informatics solution: incorporating the data elements within the database into the Healthlink software and eliminating the need for the database altogether. This would bring the data under the umbrella of security provided by the Healthlink system. While enhanced security is desired, it may come at the cost of functionality. The spreadsheet that currently houses this data is easily accessible and searchable by the members of our team, and its contents are valuable in providing direction for care. If the data is merged with the Healthlink software application, a report will have to be generated in order to access it. Healthlink reports are more time consuming than simple spreadsheet searches, which is the point of contention. Ideally, the efficiency of Healthlink data retrieval will improve over time and allay this concern.
Data, Information and Technology and Venous Access: The Next 5-10 Years
Over the next 5-10 years, continuing to strive to improve processes involved in healthcare documentation of venous access related history, assessment, and plans of care will capitalize on the power of EHR’s to support improvements in care. According to Al-Rawaifah, Aloush, and Hewitt (2015), variance in the coding systems used by different healthcare organizations complicates the mission of gathering and managing data for research. Therefore, standardized terminologies and coding systems will routinely be applied to maximize the sharing of data between organizations and across healthcare settings to promote the availability of data for research purposes. Patients will contribute to the documentation of their venous access device (VAD) related health history through the use of personal health information tools. Apps that allow for patient and family tracking of the patient’s venous access experiences in real time will serve to inform the health history and in this way contribute to a complete picture of each patient’s VAD-related health history.
Technology will advance to support the increasing patient demand for access to healthcare information and improved quality of care, as well as provider and bedside caregiver demands for efficient methods of documentation, care planning, and data retrieval. Internet access will be free and universally accessible to all regardless of setting. Patients and families will be provided with smart technology, free of charge if needed, to enable them to engage with the new paradigm of real-time recording of subjective data with regard to their VADs. Order entry, documentation, medication administration, chart review, and patient/family and staff education functions will be available via a single hand held device. Health care providers and caregivers will carry these devices equipped with voice recognition capability so that data is integrated into and accessed from the health record with maximum efficiency. The EHR will enable user-friendly report generation by authorized individuals without the need to wait in line for Information Technology service’s assistance.
The early selection of the most appropriate VAD to meet the needs of the desired therapy will be a routine occurrence. Patients and families will be meaningfully engaged in VAD related decision making through the use of shared decision support tools which serve to educate and incorporate the personal values and desires of each patient into decision making. Providers and nursing staff will be supported in efforts to optimize VAD selection through the use of clinical decision support tools. These decision support tools will undergo ongoing evaluation and iteration to incorporate the most current evidence and guidelines available.
Informatics will support the ideal care and maintenance of all types of VADs. Patients will have access to troubleshooting tips and tricks for care and maintenance in the outpatient setting at the tip of their fingers. Contact with healthcare providers will be ongoing through the uploading of patient reported health data. This will facilitate early intervention and avoid delays in assessment and treatment of potential VAD related complications.
Human factors engineering will be fully employed in all aspects of informatics related to VADs. Recognition of the limitations of human cognition and physical capacity will be the rule rather than the exception when work systems and processes are designed. Timely and accurate ordering of VADs will be seamless and eliminate the potential for human error. Software applications will deliver up to date, evidence-based, and patient specific VAD care and maintenance guidelines, in easy to access and easy to consume formats, where information chaos, overload, underload and conflict are eliminated.
Social/Political/Economic factors
While the Patient Protection and Affordable Care Act has done much to begin to ensure equity of access to healthcare resources for all, there is still much work to do. Matthew M. Davis, in his discussion of whether healthcare is a right or a privilege, agrees: “While the PPACA certainly includes provisions designed to shift the sense of coverage from a privilege to a right, it is not clear that the U.S. health care system will achieve transformational change until the policy plane shifts from the individual to the collective.” As alluded to above, patients and providers will increasingly rely on technology and internet access to support the ideal selection, care and maintenance of VADs. Currently, socioeconomic factors related to access to these technologies influence patient and provider’s ability to participate fully. As access to data, technological tools, and information become vital to the provision of quality care, my hope is that U.S. healthcare reform will one day create a healthcare environment that supports and enables access to technological resources for all. This will be necessary to ensure equity and justice in access to quality healthcare for all.
Solutions and Committee Involvement
The solutions I’ve proposed throughout this blog are informatics and workflow related. They impact nursing, provider, and pharmacy practice, including changes to nursing documentation and CPOE. As such, after review of proposed solutions with the Venous Access Team Unit Council and department Nursing Manager, contacting the Nursing Practice Council, the Advanced Practice Council and the Informatics Council would be good places to start in presenting ideas on an organizational scale. In addition, contact with and input from the Education and Quality Councils as well as the Council of Nursing Unit Chairs will likely be important.
Concept Map
The concept map for my focus area has evolved throughout these six weeks with my understanding of what would be needed to address the problem of early assessment for venous access needs and how informatics concepts may be applied. Initially, I began with a fishbone diagram (below) that served to provide a visual guide for understanding how various system factors might contribute to the success of the VEAP. This visual illustrates the need to find ways to use informatics to retrieve and capitalize on patient specific data as a priority in developing the VEAP.
Reflection upon the SEIPS model work system design for patient safety, which emphasizes the central role of people within a work system, inspired me to consider a visual which reflects this emphasis (see below). I wanted to illustrate the interdependent nature of the people involved in making safe and timely decisions regarding venous access.
As the focus of my problem is early assessment for venous access, I constructed an algorithm (below) for decision support that illustrates the decision making necessary in choosing a device.
Learning about clinical and shared decision support tools helped me to envision how the SEIPS model would reflect the tools and technology that contribute to the VEAP. This led to visualization of the other work system factors: people, organization, task and environment and how all of these components impact the VEAP and it’s outcomes. It then became clear that my concept map should ultimately reflect the role of the VEAP within the context of the SEIPS model work system design, rather than simply the algorithm used to establish the ideal VAD for a given patient and plan of care.
The arrows returning the processes and outcomes back to the work system indicate the iteration on the model that is necessary to generate knowledge, build on process improvement, and steadily improve patient and organizational outcomes.
Takeaways
The SEIPS model of workflow design is just a place to start. After reading Jeff Belden’s blog entry regarding workflows, we are reminded that even seemingly simple workflows can (and do) take on increasing complexity that may be underappreciated. This is an important concept to grasp, and one of the significant takeaways for me from this course. Understanding the analysis and evaluation of work system, process, and outcomes that is required to build a foundation for knowledge and wisdom transfer has given me a greater appreciation of the underlying complexity necessary to build on existing healthcare and nursing knowledge and wisdom.
Another learning point that I leave this course with is the potential for informatics solutions to empower patients. Prior to this course, if I thought of informatics at all, I thought of it as a way to serve the healthcare system. The idea that informatics can serve and empower patients had never occurred to me.
Lastly, in one of my early blog entries, I discussed being frustrated as a new nurse by the seeming lack of ability to confer knowledge and wisdom from one generation of nursing to the next. It seemed such a waste to constantly have to reinvent the wheel – if it was reinvented at all, that is. And even now, after 22 years as a practicing nurse, I hold the same concern. However, there is light at the end of the tunnel, and I can see how informatics can provide the solution.
Looking to the future, it is difficult to imagine the specifics of my career trajectory at this point. I know a lot more about what I don’t want to do than what I’d like to do with an advanced practice nursing degree. However, I can say with confidence that informatics will be a significant part of my practice, wherever I go. And that’s not just because I won’t have a choice (as none of us will!), but because I see and embrace the power and potential informatics holds.
Thank you all for reading my blog and sharing your thoughts, it’s been an enlightening 6 weeks!
References
AL-Rawajfah, O. M., Aloush, S., & Hewitt, J. B. (2014). Use of electronic health-related datasets in nursing and health-related research. Western journal of nursing research, 37(7), 952-983. doi: 10.1177/0193945914558426
Belden, J. (2015, July 28). Workflow: Not as simple as it seems (Web log comment). Retrieved from http://toomanyclicks.com
Davis, M. M. (2013, August 13). Right, privilege – or tragedy of the commons? (Web log comment). Retrieved from http://www.rwjf.org/en/culture-of-health/2013/08/right_privilege_or.html
McGonigle, D., & Mastrian, K. G. (2015). Nursing informatics and the foundation of knowledge. Burlington, MA: Jones & Bartlett Learning.
Mastrian, K., McGonigle, & D., Farcus, N. (2015). Ethical applications of informatics. In D. McGonigle & K. Mastrian (Eds.), Nursing informatics and the foundation of knowledge (pp. 67-87). Burlington, MA: Jones & Bartlett Learning.






